CF Networking Group

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The CF Parents and Caregivers Networking Group is made up of CF parents, families, friends, and CF caregivers from St. Louis Children's and Cardinal Glennon Children's Hospitals.  It is designed to be a place where everyone can come together to discuss and share issues related to Cystic Fibrosis.  Our goal is to stay up-to-date on topics that  maintain and improve lives of those with CF.

 

We meet on the first Tuesday of each month at 7p.m., with guest speakers every other month and an informal get together on the remaining months. Flyers will be sent out, through Cardinal Glennon and St. Louis Children's Hospitals, as a reminder for the months we have speakers.

We truly welcome everyone to these meetings, parents, family members, caregivers and friends. We especially welcome parents of adolescents or teenagers, your wisdom would be greatly appreciated.

Dates to Mark on Your Calendar:

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Our next meeting will be held on Tuesday, March 1st at 7:00 p.m. at the Ronald McDonald House. Dr. Jamie Wooldridge, Pediatric Pulmonologist with Cardinal Glennon Children’s Medical Center will be presenting “Cystic Fibrosis Related Diabetes: Everything You Might Want to Know” The Ronald McDonald House is located at 4381 West Pine Blvd. From Kings highway turn East onto West Pine, travel through 3 stop lights, cross Newstead and it is the 3rd house on the left. Parking is in the gated lot. The conference room is located in the basement of the long term apartment building (once you enter the gate go right and follow the sign, entrance down the stairs under the awning).

 

 

If you have any questions or comments, please feel free to contact parent coordinators
Becky Menzel  314-647-3518 or
Missy Sweeney  636-349-2469

You may also contact your CF Care Centers
Judy with Cardinal Glennon  314-268-4107 or
Amy or Karen with Children's Hospital  314-454-2353

 

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Last updated: 11/17/2009